The NTPFSG meets on Zoom every Thursday morning at 11am.
Alternating between a Carers meeting one week followed by a sufferers meeting the following Thursday. Family members are also very welcome to attend our carers meetings. Our Zoom meetings are scheduled for an hour from 11am until 12am, but do quite often run over.
If you have not used Zoom or heard of it. Zoom is a virtual means of communication between groups of people who can see and hear one another on a computer, smart phone, lap top or tablet.
If you have concerns about using Zoom one of our support group members will be more than happy to help you, understand how to use it or you can watch the video below.
On the last Thursday of each month there is a speaker from the NI Hospice who will give a presentation relevant to the needs of pulmonary fibrosis sufferers. Carers family members and sufferers of PF from around Norther Ireland are welcome to attend our meetings.
Anyone wanting to attend these meeting should take the opportunity to become a member of NTPFSG and receive login information about joining the ZOOM calls/meetings..
To join the NTPFSG talk to your specialist respiratory nurse or consultant, or contact us direct at firstname.lastname@example.org or direct on 07714469327
We can also be followed on Facebook at Northern Trust Pulmonary Fibrosis Support Group, or twitter @pfsg_nireland
Face to face meeting are not being considered at the moment; this will be reviewed later this year and advice will be taken from our medical experts.
We believe that our meetings provide essential friendship, information, guidance and signposting, in a friendly no pressure environment, that will help you and your family live better life with pulmonary fibrosis.